Journals R14 Release tonight, Midnight EST (9PM PST) :
Wanted to share something I thought was really funny.
There's this guy we know that sales trinkets and what not beside the road. We usually stop and see what he has a few times a month. Last time we were there I noticed a red truck sitting in the parking lot that had lots of stickers on it's back window. One of them said, "My other toy has tits." I put Robert up to ask him if his other toy was a blow up doll. hee hee
He wouldn't! party pooper!
I can't believe I'm up at 6 am eating! Last night Robert made a pot of his made from scratch spaghetti and meatballs. I pigged out then and just now finished another large helping a few minutes ago. It's so good! I hope I can hold it down. So far, so good.
I went to the hospital around 3 PM on Thursday to get three bags of platelets and two bags of blood. I didn't get released until almost 11 am Friday. Plus I had to go three days straight to get a shot of leunasta (sp). It's to help build my white cell count. Mine was down to 1.4. The shot makes me so sick and my bones hurt even worse than without it. And the shot itself is so very painful. Both my arms are sore and tender to the touch. We had problems with the IV so my left arm is so sore I can't stretch it out straight.
I'm doing pretty good with quitting smoking. Only had a few relapses. Still, I think I'm doing good since I'm doing it cold turkey. Hardest times are after a meal or if I become upset/angry.
I had Robert take my truck to H.C. Lewis to get new tires and a front end alignment. Almost $300 for tires! Soon as the tires were off, the mechanic came in and said they couldn't do an allignment because the ball joint is going bad on the passenger side and my steering box is going out. Very expensive problems. A rebuilt steering box and labor will be almost $400!
Is it just me and my luck or does it seem like something like this always happens on or around Christmas for anyone else?
My aunt Debbie has offered to go with me for the two months that I will need a caregiver during the transplant. Now Robert says he's not staying here and catering to Cameron while I'm in the hospital. So selfish! I can't win for losing.
Why can't they put me and my healthfirst for once and work with me on this?
Dawn, I'm sorry I haven't returned your calls. Don't give up on me. I just haven't felt very sociable. I love you and say Hi to Bob for me.
Wish I had some new pictures to post but I haven't felt like doing that either. Plus, I keep forgetting to take my camera with me.
I'm off to bed. God Bless you all with a Happy and pain free weekend. And don't forget to change your clocks back. I heard that some peoples computers and clocks reset their time a week early. Mine didn't!
THE REGISTER-HERALD (BECKLEY, W.V.)
LEWISBURG, W.V. — Animal control officials say cameras will be installed on a tract of land in north-central Greenbrier County to document a hunter's claims that a free-roaming African lion has made a home near Cold Knob.
County officials are dealing with the unusual scenario because exotic animals do not come under the jurisdiction of the state Division of Natural Resources, county animal control officer Robert McClung said.
Motion-sensitive video cameras owned by the state Department of Environmental Protection and used to catch litterbugs and still cameras used by hunters could be placed on trees at Big Roaring Creek, he said.
“For the sake of the public’s safety, we need to confirm this,” McClung said. “If we can confirm that it’s a lion, plans are being made to use a bear trap to capture it.”
McClung said if the big cat is eventually captured, it will be turned over to the Tiger Mountain Refuge in Rainelle, a nonprofit group that takes in abandoned exotic pets.
While bow hunting last week on his 40-acre tract at Big Roaring Creek, Jim Shortridge, 72, of Frankford, said he watched the 300-pound male lion for about 40 minutes.
The Register-Herald, Beckley, W.V.
I have got to get to bed. I've sat here for way too long tonight reading journals and news links. Oh, and trying to update my Norton's. Looks like I'll have to purchase another years subscription. Robert said he'll give me the money for it tomorrow. At least I'm getting a 40% discount because I already have an older version installed on my computer. So, that's a good thing.
Some of you had asked why Cameron can't stay with Robert. Robert will be with me two of the three months of getting the bone marrow transplant because I have to have a 24 hour caregiver and I won't be in the hospital but next door to it in an apartment they provide through the family house. It's like a Ronald McDonald House.
All of my family and Cameron's father know that I need a care giver and that Cameron has no place to stay but none of them have offered, even when asked, to do either. They just don't care. Cameron doesn't even hear from his Dad on birthdays and holidays.
I could take him with me but that means he'd miss two months of school and he's barely getting by as it is.
It's his own fault that no one wants to take him in. He's 17, hard headed, argumentive, lazy, and disrespectful to adults when things don't go his way. Other than that, he's a good kid. LOL
I wanted to share this link with you guys and ask you your opinion of what you think it is. I don't think it's bigfoot, but I don't think it's a bear either. It looks more like a monkey to me.
I'm so excited and nervous!! I get to meet a long time online friend (Nelishia) next month when she comes along with her church family (all the way from GA.) to visit a church near me. Actually only a few minutes from where I live. I hope I'm not in the hospital at the time.
The weather has finally turned to Fall here after a few days of rain that California folks could use. Today's high is 55. We usually have our first snow around or shortly after Halloween. I'm not looking forward to that at all.
Robert's car finally died. It's the motor and way too expensive to fix. I wish I had the money he has put into that car. Thank God I have my truck, even if I'm not allowed to drive it. Doctors orders!
I wanna say thank you to Guido (you know why. BIG HUG) and all the new visitors and old to my journal for their prayers and concern. Thank you Connie for lighting a candle for me and sharing the web site with me also. That was awesome! But the entry I did yesterday about the buddy list had nothing to with journals, not having friends or readers, I promise. I wasn't fishing for sympathy, readers, comments, etc. There was no hidden meaning and I wasn't trying to offend or hurt anyone's feelings.
Does anyone else read the Sunday comics, specifically Funky Winkerbean? Robert and I became hooked on it when Mrs. Moore was diagnosed with cancer. She passed away I think three Sundays ago. I cried!
I hope everyone is having a good Sunday and may God Bless you all.
I was editing my buddy list today and decided to remove some peoples names from it because 1. I never see them online anymore and 2. I never hear from most of them. When I was finished it was kind of depressing because now I'm only left with three people on my list. I don't know why it bothered me since I don't like to instant message anyway.
Last night I logged off the computer and got up to turn off the lights and go to bed when next thing I knew I was lying in the floor unable to move. I had passed out again. Cameron and Robert both were in bed so all I could do was lay there until I was able to call out to Cameron since his room was closest to me. Poor kid, it scared him to death. He wouldn't go back to bed until I let him wake Robert and then get the OK from both of us that I was gonna be alright.
On my last visit to the Dr he told me I tested positive for Rheumatoid arthritis. That explains why I'm so stiff and in so much pain. He also told me that soon my body would start rejecting the blood and platelet transfusions.
I still haven't found anyone to care for Cameron for two of the three months I'll be in the hospital for the bone marrow transplant. I'll be speaking with a Social worker Tuesday to see if they can find him a temporary foster home. I hate getting them involved but what other choice do I have? It's a sad situation. No one with cancer or any other serious illness should have to worry about such things. And neither should the child. :(...
When you're already feeling bad/depressed and someone shows you sympathy, does it make you cry? It does me. Sometimes I can fight it off, but not always. I'm the same way when getting a compliment. I never know what to say and instead of saying thank you, I blurt out, you liar! or, you either need glasses or your're drunk. ")
I saw Dr. Craig for a checkup on Wednesday. He didn't seem as enthusiastic this time as all the others. Kinda scared me a little. I go back November 11 so they can check the nicotine levels in my blood,to make sure I've quit. :) I CAN DO THIS!
Since I can't be around second hand smoke either, Robert has to quit. We'll see...
We were on 79 N when Robert saw this and told me to grab the camera. It cracked me up until I started wondering if it was a real person. Nah, it couldn't be. Could it?
I've been really sick. I don't have the strength to stand up long enough to cook a meal. Even bathing myself wears me out. My house is a mess and it drives me crazier than anything else!! They say it's the chemo and that it'll get better, but I don't know. It wasn't this bad before. I just hope that I don't have to take anymore.
My great uncle Wendel Littles died of cancer a few days ago. Even though I wasn't close to him, I had a really hard time with it. Mostly because he had been prayed over and he believed he was healed and yet he died anyway.
My hair is coming back, slowly but surely!
I weigh 107 lbs and down to a size 3. I wouldn't mind this weight if I could just get toned up.
Everyone says I look awful, and I do.
God Bless everyone!
I'm gonna try to make an entry. If I lose it, I'm not trying again until I get home. This is so frustrating without a mouse. I can just hover over something with the pointer and it clicks it on it's own. And this wireless connection isn't all that. I keep getting booted.
I'm sitting here now at 7:10 pm waiting on a surgeon to come and remove my hickman catheter because they say it's what is causing my blood infection. They came in earlier and tried to put an IV in my arm with me telling them that they couldn't because my veins are all used up and will blow. They didn't listen and they blew. Big surprise! :(
They think I'm having mild seizures.
I go over to the dentist office tomorrow. It's part of the hospital. I don't know if they'll pull my bad tooth or fix it. Right now, I don't really care. I'm just tired of the infections and pain.
I bought myself three pair of happy bunny pajama's and everyone thinks they are so cute. One of the shirts says, "It's cute how you think I'm listening."
Robert and hopefully Cameron are coming up tomorrow.
I'm gonna save this now before I lose it.
Just got home today from spending another week in Ruby Hospital and hopefully, my last round of chemo. I go back I think on the 24th for a follow up. If the results from that are good, we move on to the next step (transplant) in 6 to 8 weeks.
500 matches have already been found on the National Registry and those must be narrowed down to the closest match they can find.
The first three days in the hospital I slept and never left my room.
Today, I feel great! It's all gloomy outside and I love it! As long as I'm home.
The photo's above will look much better if you click on them and view them larger. I was snapping pics as Robert was driving. I don't think I did too bad. I wanted to show you guys how the trees are changing here. It gets so pretty in the fall.
Everything you need to know about getting on the National Registry and being chosen to be a Bone Marrow Donor.
I think it's a lil funny that when I make a journal entry that is "Religious" themes I rarely get comments. I often wonder if it's because people just don't wanna know or what the deal is.
No biggy, just something I'm curious about. I know that I am on a Christian mailing list and the Author often goes overboard with the very long emails. LOL Gotta love him and his commitment and faith though.
We'll be leaving again tomorrow for Morgantown. I'll be staying for five to seven days to get my (hopefully) last round of chemo. Some of you have asked whether or not anyone could be tested outside my family. The answer is YES! Anyone can be tested.
If anyone is interested, drop me an email and I'll give you all the information you need. I'll need some info from you too. But, if you don't feel safe giving it to me, you can always give it to the nurse that will be contacting you, that is, if you decide to be tested.
Doc says that after I finish this last round of chemo, I won't have a lot of time to play around with. That we'll need to find a donor ASAP.
I wanna thank everyone that has shown interest and concern from the bottom of my heart.
God Love you Bless you all.
This Hickman Catheter they put in yesterday is being a real pain in the arse. I don't remember it hurting this bad before and I certainly don't remember it making me cough, being short of breath or feeling like I'm being stabbed in my lung. I can't even lean on or lie on my left side.
I called my Home Health Nurse earlier and asked if she would be coming out tomorrow morning since it was a Holiday and she said no, that it wasn't in her orders. But, if I needed something she would gladly come by. I told her the problems I was having with the hickman. She asked if it had been bleeding and I said yes. So, She'll be out tomorrow. WooT!!
I don't know if they are all like that but the two that take turns coming out to see me are nothing less than angels. They are so sweet, concerned, and compassionate. I'm not used to being treated like that so they often make me cry. (pity party) LOL
One of them is named Flora and I love her to death. She nicknamed me sissy and that makes me feel like the biggest ole baby. In a good way! LOL
Robert and I left yesterday afternoon for Morgantown. Just before dark a terrible storm came up and the rain was coming down so hard you couldn't see the road. A lot of people, including us, pulled off the road for safety.
I love staying at Hotels, the fancier, the better. Although, I have yet to stay in a "real" fancy Hotel. But, I have stayed in some nice ones. Winngate Inn is one of my favorites just because they have huge rooms.
My next favorite is the Waterfront, downtown Morgantown. The waterfront view is awesome!
Last night we stayed at Euro Suites, for FREE!! Not only do they have nice rooms and a bed to die for, but their windows actually opened. That's a big plus for me cause I have to have fresh air. And check out isn't until 1:00 PM! Too bad I had to get up at 5 am for surgery. :(
So, today they took out the central line that I've had in for over two months and was so very tired of. They replaced it, on the opposite side with a Hickman Catheter and boy, oh boy, is it ever sore and painful. And ever since I woke up from the anesthesia, I've been coughing and OMG, that really hurts.
I tried to get a few pictures a long the way but Robert wouldn't stop the car, so I only got a few worth loading. Hope you enjoy them.
Oh, and I have no idea who the kid on the bus is. He just wanted his pic taken. We were sitting at a red light! LOL
I suppose I have officially been placed on the National Donor List since my brother flat out said he didn't want to be bothered with it. That's OK, his choice, and one he will answer for later.
I've been thinking about getting a physical therapist to come out to my house and put a fire under my butt to make me get up and get in shape. But, it is just in the thinking stage as of yet. hee hee
I'm a privateperson and it's hard inviting strangers in your house, but I'm getting over it, slowly!
I'm thinking someone called my Dr's office and reported that I am being mistreated at home. I had Cameron with me. It was his first time going and the nurse asked me if he was my boyfriend. After I told her he was my son she asked flat out, "Lahoma, Are you being abused at home"? I was so shocked I couldn't say anything for a minute then I blurted out NO! Then she says, "How come I don't believe you"? I was so uncomfortable and I could feel my face burning, but she let it go at that. Or, at least I hope she did. I now wish I had asked her where she had gotten that idea from.
I can honestly say that, NO, I am not being physically abused.
"Click on the pics above for a few quotes and hopefully a smile".
The writer is Leonard Pitts, a columnist for The Miami Herald. Mr. Pitts was writing concerning a young man in the South Carolina Juvenile Detention Center. The artilce was written as if Mr. Pitts were speaking directly to this young man.
"Keep your eyes on the prize. Never satisfy a short-term impulse at the expense of a long-term goal. Never do what feels good in the moment if it's going to cost you something that matters a whole lot more in the end. The trade is never worth it."
"When people make investments, they are looking for a return, a profit. In your case, that profit would be that you leave that place and never look back, that you build a life that makes you a credit to your community as opposed to one of it's deficits. You can do that. Step one is to always remember: Eyes on the prize.
Now reread that and think of the Kingdom of God. When God makes an investment, He is looking for return, a profit. In your case, that profit would be that you leave that place of sin and never look back, that you build a Christian life that makes you a credit to your community in this life and in eternity instead of being a deficit. You can do that in Christ. Step one is to always remember: Eyes on the prize...our eternal prize Jesus Christ.
On Monday I went to my Oncologist office for blood work. My white cell count was .7 and my platelets were .4. Both very low. Dr. Ahmed said I needed another transfusion so he ordered blood and platelets. They come from Roanoke, Va. so I had to wait until Tuesday but be at the hospital as early possible. Tuesday came and I was later than I wanted to be getting to the hospital because I had to go by the Jr. National Guards Special Forces office to drop off papers for Cameron.
The Dr. had originally ordered two bags of blood and six bags of platelets but I ended up only getting the blood and three bags of platelets. Which was fine with me because I had already sat there almost 9 hours and I had an early appointment in Morgantown the next day. We had planned on leaving early and spending the night in Morgantown but that didn't happen.
We did leave early the next morning though only to not even make it to Morgantown. We had just come into Chapmansville when we came upon some debree (sp) in the road that looked like large hunks of rubber from truck tires. To keep from hitting it, Robert tried to straddle it and it turned out to be a piece of metal that ripped holes in the gas tank (emptying an entire tank of gas in less than 30 seconds) and the exhaust. Luckily we were on a hill and the car coasted to a speedway where Robert called a garage to come get the car.
The owner of the garage came out to tow the car. He said we were blessed by the Lord on that day because the gas tank could have easily exploded. SCARY!
He fixed the gas tank and when Robert asked him what he owed him, He said, "I don't know how you feel about the Lord, but God Bless you both." And didn't charge us a penny! WOW!
He told us where to go, to get the exhaust pipe fixed and that cost $40. By the time it was all done and over with we were hot and exhausted from being out in the heat for about four hours so we ended up getting a room and crashing in the AC for the rest of the day.
I guess we were blessed in many ways that day.
Cameron got to fly in a C-130 troop carrier yesterday. He said it was fun until they went to land then his stomach went up into his chest and he almost puked. LOL
I've been eating a lot of fatty foods trying to gain weight. It's not working and my skin is hanging off me like an 80 year old woman's!!!!! OMG! I could cry every time I look into the mirror! What the hell can you do about saggy skin???
I finished my second round of chemo a few days ago, been home almost a week. I was given a bag every 12 hours for seven days. I wanted to make an entry before I left but the phone lines had been down for two days. Verizon sucks in this area. I had them when I lived in Virginia and never had a problem.
It wasn't that bad being in the hospital alone this time.
When I came home a port a potty was sitting on my porch. I found out that a Dr. Bill ordered it for me. To my knowledge I've never met the man and I surely don't need a port a potty. The bathroom entrance in my bedroom is only about six feet away from my bed.
The day after I got home I had to sit in our local hospital for six hours getting platelets. I was in a horrible mood and took it out on the nurse in training because I told her the blood pressure cuff was too tight and she just stood there looking at me.
She never came back.
I go back to Morgantown on the 8th to meet with Dr. Craig for an evaluation.
My white cell counts and platelets stay very low. Dr. Ahmed thinks I'll need another blood transfusion by the time I see him Monday because the red cell count was low too. The guidelines were changed and what was considered too low before isn't now. I don't understand their logic.
I was finally approved for Disability. The Leukemia diagnosis is what they approved me by and they only gave me back pay from the time I was diagnosed, March thru July. So, I didn't get much. Not even enough to get me a better vehicle. Which I need really bad.
But, I'm soooo thankful for the extra income.
They (Dr's) have a home health nurse coming out to the house twice a week. I thought by her coming I wouldn't have to go to the Doctor quiet as often but I was wrong. My CBC has to be done twice a week, Mondays and Thursdays. So, the nurse's flush my lines, checks my vitals, changes the dressing on my central line, and talks with me. They're nice ladies.
See the red on my chest? That's where Dr. Ricky yanked the dressing off and took some of my skin with it. I didn't think it was funny!
I'm back up to 120 pounds. :)
Here's a few photo's that were taken while I was in the hospital.
I've had good days and bad days since being home. Mostly bad since I was expected to take 10 hours out of every day and spend it at the bluefield hospital getting antibiotic treatments for a fungal infection in my lungs. It became too much and I called Dr. Craig so he said I could quit. YAY!
The nurses gave the antibiotic the name shake and bake because of it's side effects.
I go back to Morgantown on the 18th for another bone marrow biopsy.
While there the last time I had two sets of Dr's that would visit me every day. One morning Dr. Moe came in and said he'd give me good news if I'd let him have my news paper. I said, for good news you can have anything you want. He proceeded to tell me that the test results were back and that I was in 100% remission. I got so happy I started calling everyone. Then later in the day the second set of Dr's came around and busted my bubble by saying that it wasn't 100%. That there are a few mutated cells remaining to be concerned about.
I dread more than anything going back....
I'm down to 113 pounds.
Hi all. I'm back at the library and only have a few minutes. They want me back by 3 and it's after 2 now. Plus it's a long walk. I had my bone marrow biopsy today, a day early. Will have the results in three days. They had a really hard time because they couldn't find any of the liquid stuff they needed from inside my bones. Will be in a lot of pain for the next few days. Thank you all for calling me. Kim, you really brightened my evening when you called. I love you guys, all of you that are checking in on me and making me feel cared for.
I had asked my family to take up some donations at church for me so Robert and Cameron could come spend some time with me. They had my hopes up and I finally felt like I had something to look forward to, then I get a phone call last night from my aunt telling that my cousins husband wouldn't let her ask the church. And he was the one that got all holy roller on the phone and promised at least $300 plus the $100 he was putting up. What a hypocrite. I told her to tell him he could keep his money.
I can't think straight with the chemo and the morphine they gave me earlier isn't helping either. I'm sorry if I forgot to mention anyone. I love you all.