Buddy list and Foster care.

 

I was editing my buddy  list today and decided to remove some peoples names from it because 1. I never see them online anymore and 2. I never hear from most of them. When I was finished it was kind of depressing because now I'm only left with three people on my list. I don't know why it bothered me since I don't like to instant message anyway.

Last night I logged off the computer and got up to turn off the lights and go to bed when next thing I knew I was lying in the floor unable to move. I had passed out again. Cameron and Robert both were in bed so all I could do was lay there until I was able to call out to Cameron since his room was closest to me. Poor kid, it scared him to death. He wouldn't go back to bed until I let him wake Robert and then get the OK from both of us that I was gonna be alright.

On my last visit to the Dr he told me I tested positive for Rheumatoid arthritis. That explains why I'm so stiff and in so much pain. He also told me that soon my body would start rejecting the blood and platelet transfusions.

I still haven't found anyone to care for Cameron for two of the three months I'll be in the hospital for the bone marrow transplant. I'll be speaking with a Social worker Tuesday to see if they can find him a temporary foster home. I hate getting them involved but what other choice do I have? It's a sad situation. No one with cancer or any other serious illness should have to worry about such things. And neither should the child. :(...

Tags: Foster Care, Rheumatoid Arthritis

feelings....

When you're already feeling bad/depressed and someone shows you sympathy, does it make you cry? It does me. Sometimes I can fight it off, but not always. I'm the same way when getting a compliment. I never know what to say and instead of saying thank you, I blurt out, you liar! or, you either need glasses or your're drunk. ")

I saw Dr. Craig for a checkup on Wednesday. He didn't seem as enthusiastic this time as all the others. Kinda scared me a little. I go back November 11 so they can check the nicotine levels in my blood,to make sure I've quit. :) I CAN DO THIS!

Since I can't be around second hand smoke either, Robert has to quit. We'll see...

We were on 79 N when Robert saw this and told me to grab the camera. It cracked me up until I started wondering if it was a real person. Nah, it couldn't be. Could it?

I've been really sick. I don't have the strength to stand up long enough to cook a meal. Even bathing myself wears me out. My house is a mess and it drives me crazier than anything else!! They say it's the chemo and that it'll get better, but I don't know. It  wasn't this bad before. I just hope that I don't have to take anymore.

My great uncle Wendel Littles died of cancer a few days ago. Even though I wasn't close to him, I had a really hard time with it. Mostly because he had been prayed over and he believed he was healed and yet he died anyway.

My hair is coming back, slowly but surely!

I weigh 107 lbs and down to a size 3. I wouldn't mind this weight if I could just get toned up.

Everyone says I look awful, and I do.

God Bless everyone!

I'm gonna try to make an entry. If I lose it, I'm not trying again until I get home. This is so frustrating without a mouse. I can just hover over something with the pointer and it clicks it on it's own. And this wireless connection isn't all that. I keep getting booted.

I'm sitting here now at 7:10 pm waiting on a surgeon to come and remove my hickman catheter because they say it's what is causing my blood infection. They came in earlier and tried to put an IV in my arm with me telling them that they couldn't because my veins are all used up and will blow. They didn't listen and they blew. Big surprise! :(

They think I'm having mild seizures.

I go over to the dentist office tomorrow. It's part of the hospital. I don't know if they'll pull my bad tooth or fix it. Right now, I don't really care. I'm just tired of the infections and pain.

I bought myself three pair of happy bunny pajama's and everyone thinks they are so cute. One of the shirts says, "It's cute how you think I'm listening."

Robert and hopefully Cameron are coming up tomorrow.

I'm gonna save this now before I lose it.

Well, I was working on an entry but this stupid laptop has other ideas. just wanted to let you know, I'm OK! I have a bacteria infection in my blood and a cold that settled in my lungs but I'm getting breathing treatments and antibiotics so I should be good to go soon. I'm gonna save this now before I lose it again. Thanks for the comments and your prayers.

Home, again.

Just got home today from spending another week in Ruby Hospital and hopefully, my last round of chemo. I go back I think on the 24th for a follow up. If the results from that are good, we move on to the next step (transplant) in 6 to 8 weeks.

500 matches have already been found on the National Registry and those must be narrowed down to the closest match they can find.

The first three days in the hospital I slept and never left my room.

Today, I feel great! It's all gloomy outside and I love it! As long as I'm home.

The photo's above will look much better if you click on them and view them larger. I was snapping pics as Robert was driving. I don't think I did too bad. I wanted to show you guys how the trees are changing here. It gets so pretty in the fall.

 

Thanks Carlene!

Everything you need to know about getting on the National Registry and being chosen to be a Bone Marrow Donor.

http://www.marrow.org/ABOUT/index.html

Yum...nothin like an ice cold country time Lemonade.

I think it's a lil funny that when I make a journal entry that is "Religious" themes I rarely get comments. I often wonder if it's because people just don't wanna know or what the deal is.

No biggy, just something I'm curious about. I know that I am on a Christian mailing list and the Author often goes overboard with the very long emails. LOL Gotta love him and his commitment and faith though.

We'll be leaving again tomorrow for Morgantown. I'll be staying for five to seven days to get my (hopefully) last round of chemo. Some of you have asked whether or not anyone could be tested outside my family. The answer is YES! Anyone can be tested.

If anyone is interested, drop me an email and I'll give you all the information you need. I'll need some info from you too. But, if you don't feel safe giving it to me, you can always give it to the nurse that will be contacting you, that is, if you decide to be tested.

Doc says that after I finish this last round of chemo, I won't have a lot of time to play around with. That we'll need to find a donor ASAP.

I wanna thank everyone that has shown interest and concern from the bottom of my heart.

God Love you Bless you all.

This Hickman Catheter they put in yesterday is being a real pain in the arse. I don't remember it hurting this bad before and I certainly don't remember it making me cough, being short of breath or feeling like I'm being stabbed in my lung. I can't even lean on or lie on my left side.

I called my Home Health Nurse earlier and asked if she would be coming out tomorrow morning since it was a Holiday and she said no, that it wasn't in her orders. But, if I needed something she would gladly come by. I told her the problems I was having with the hickman. She asked if it had been bleeding and I said yes. So, She'll be out tomorrow. WooT!!

I don't know if they are all like that but the two that take turns coming out to see me are nothing less than angels. They are so sweet, concerned, and compassionate. I'm not used to being treated like that so they often make me cry. (pity party) LOL

One of them is named Flora and I love her to death. She nicknamed me sissy and that makes me feel like the biggest ole baby. In a good way! LOL